Tuesday, May 26, 2009
Daily Dose, Tuesday May 26
Hope spent most of the day sleeping today. Everyone is keeping a close eye on her to make sure that she is getting enough valium that she is relaxed and comfortable, but not so much that she sleeps all the time. At this point we are going to keep the dosage the same, but monitor her on a daily basis.
Hope spent some time with her physical therapist this morning and they were very pleased with what they saw. Hope has been practicing every day with daddy and mommy and she showed the physical therapist just how well she is doing learning how to hold her head up.
The big news of the day was that the developmental pediatricians started their evaluation of Hope for oral feeding. She was pretty sleepy but they were pleased with what they saw. Hope took a bottle happily and without any trouble. They want her to resume the non-nutritive feedings and if that goes well they will put Hope through a swallow study later this week to assure she is not having any reflux or swallowing issues. Hopefully she will do well with this and she will soon be able to take some of her food orally instead of all by feeding tube as she does now.