Hope's Mommy & Daddy met with the pulmonologist today who got filled in on the scoop regarding Hope's episodes, need for more oxygen and coughing. The pulmonologist said that sedation CAN have the effect of relaxing Hope to the point of not having as many episodes, which would explain why she was better right after surgery. The pulmonologist has recommended several things.
Hope is going to have another chest x-ray because the last one was taken as she was exhaling and didn't show good expansion.
They are going to take a culture from Hope's trach to see if there is any infection that might have been missed.
Hope will have a bronchioscope, like she had at Riley before her trach, which will hopefully show if she has any irritation, inflamation or abnormal growths in her airway.
Hope will have increased ventilator settings slightly to see if the additional support will help her.
We are all hoping that one of these things will point us in the right direction so that we can continue to get Hope ready to come home!!
Hope gained more weight last night and now weighs 11 pounds 8 ounces!
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