Hope had a good day today- her blood gasses were so good the doctors decided to wean her respiratory settings. We are hoping that Hope will tolerate this well and begin weaning again.
We don't have a firm date for Hope's next surgery yet but will probably be sometime next week. Hope has continued to be an all-star with her feedings. She has now been cleared for 20mls in her bottle now. The plan for after surgery (and after she begins eating again) is to get her to the point she takes as much as she wants from the bottle, which Aunt Em thinks will be the entire bottle. This is great progress!!!
Tomorrow is the BIG MEETING with everyone involved in Hope's care, including the home nursing staff, home ventilator staff, etc. We are looking forward to good news on when Hope will be cleared to come home.
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