Daily Dose, Saturday June 13

Hope has had a very good couple of days. On Friday she got up out of bed and played on the floor with her physical therapist again. She tried to tell him at first that she wasn't in the mood to play and she wanted to sleep, but everytime she would pretend to sleep, she'd open her eyes back up and find that he was still there!! Finally she figured, 'what the heck' and decided since she was up she might as well play.

As you can see from the last picture, Hope is still enjoying her mirror. She fell asleep watching herself in it.

Hope has broken another weight milestone. Her latest weight is ..... drum roll please.... 10 POUNDS 2 OUNCES!!! Hope is now over 10 pounds!!! Way to go Hope!!!!!

Daily Dose, Thursday June 11

Hope was tired today. She was up most of the night admiring the beautiful baby that appeared in the mirror that was put in her bed overnight.

The doctors think that since Hope has been doing much better not arching her back and having fewer severe episodes, they want to try to reduce the amount of valium she is getting. Hopefully this will allow her to be more alert during the day but still remain calm and comfortable.

Since she was so tired and slept so much today, Hope didn't get to try a bottle feeding today. Hopefully she will be a little more alert tomorrow and will be able to show everyone how well she can eat from a bottle.