Daily Dose: Tuesday, February 24

Hope: day 79

Hope: day 79

Hope: day 79

Hope: day 79

Hope: day 79

Hope had another great day today. She had no episodes, so this is at least 5 days without any episodes!! The doctors are thinking about weaning down Hope's CPAP pressure. Currently she is on 7 but they are thinking they will wean her down to 6 within the next few days. If Hope handles that well then they will continue to wean to 5. If THAT is handled well for a few days then the doctors will switch her over to vapotherm, a nasal cannula supplying oxygen that is humidified and heated.

Hope gained weight today!!! She is now up to 1540 grams, 3 pounds 6 ounces. She is really striving to be the biggest Fatty!!

Other than that, Hope got to snuggle with Daddy for 2.5 hours today and Mommy was able to take some great pictures of Hope's face without any tubes or her "trunk" or CPAP hat on! ISN'T SHE AMAZING!?!?!

Daily Hope: Saturday, January 24

Hope fights

"Aunt Em!!! I can't take the paparazzi anymore!!"

Hope: day 48

Hope being held by Mommy with Daddy, Grandpa Robinson, G'ma Robinson & Aunt Em

Hope & her Mommy & Daddy

Hope: our little ladybug

Hope & her Mommy

Hope: day 48

Hope's FACE!!!

Hope & Mommy

Hope: day 48

Hope: the dancing queen

Today was a great day for Hope!! Hope now weighs 2 pounds 6 ounces!! Rather "full" or "healthy", but not "fat" or "plump". She is quite the character. She was fairly active this morning, and part of that was captured on film (see the video above). Hope is currently filming for the release of her upcoming music video. Stay tuned for that in the future....

Hope spent about 3 hours snuggling with her Mommy today. Hope maintained her body temperature and all her breathing was very regular and good. In fact, everything was better when she was snuggling with Mommy as compared to just chillin' in her isolette.

Hope had her tape changed and new tubes and such adjusted. So we had a chance to see her face again!! And put on a new pink fluffy hat (made by Peggy the RT). The pink hat goes very nicely with the new blanket she is sporting. The Hope Collection is really starting to shape up.

Hope got to hear lots of good stories today. Aunt Em told her all about the Inauguration of the 44th President of our lovely country. Aunt Em had the opportunity to travel to Washington, DC and view all the festivities surrounding the inauguration. It was a pretty incredible experience. Aunt Em told Hope how everything she saw reminded her of Hope, partially because Hope's name was plastered around the City. Being around such a large group of people who all believe in the same thing and are there for the same reasons, that is pretty amazing. Aunt Em got chills on numerous occasions, just seeing the American flag waving, hearing the President's Inaugural address, seeing the motorcades, and on and on. Hope kind of tuned out when Aunt Em started talking "shop" about politics and platforms and executive orders. But one day I'm sure Hope will understand it better, or at least appreciate it.

We are all so thankful for the good days that Hope has been having and pray that they will continue. Hope is getting so strong and looks so good.

Daily Hope: Friday

Hope: Day 19

This is a quick entry but I couldn't help but share with the world the first time we have seen Hope's beautiful face without the tape or tubes. Isn't she amazing?!? They had to change a tube and fortunately dad snapped a quick photo!!

There will be more entries later, lots to update from yesterday!!